Cancer Type-Specific Professional Organisations, Research Initiatives and Sites

Rare SKIN Cancers

  • European Association of Dermato-Oncology (EADO) The EADO is dedicated to promoting, coordinating and improving clinical and laboratory research activities in the field of skin cancer including primary and secondary prevention, early detection, clinical diagnosis and clinical and experimental research.
  • EORTC Melanoma group (EORTC MG) The EORTC Melanoma group (EORTC MG) conducts clinical trials and translational research in the melanoma field. Its objectives are to improve clinical care of patients suffering with cutaneous or ocular melanoma, and to increase knowledge about melanoma acquisition and progression.
  • European Skin Cancer Foundation (ESCF) The ESCF aims to assist in developing and providing standardized prevention strategies and treatment guidelines on a European level, contributing thus to better primary and secondary prevention of these malignancies as well as to dissemination of best treatment practices through training and exchange of knowledge.
  • European Society of Skin Cancer Prevention (EUROSKIN) EUROSKIN’s principal aims are to reduce the incidence and mortality of skin cancer through the promotion and co-ordination of collaborative actions between European professionals active in the fields of primary and/or secondary prevention.
  • European Society for Dermatological Research (ESDR) By supporting investigative dermatology, the ESDR contributes towards improving the health of patients suffering from skin and venereal disease. The ESDR also facilitates exchange of information relevant to investigative dermatology between clinicians and scientists worldwide and promotes the presentation of new research data and ideas at scientific meetings and clinically oriented symposia.
  • Melanoma Molecular Map Project (MMMP) The MMMP is an open access, interactive web-based multi-database dedicated to the research on melanoma biology and therapy. The aim of this is to create an organized and continuously updated databank collecting the huge and ever growing amount of scientific knowledge on melanoma currently scattered in thousands of articles published in hundreds of Journals.

Rare THORACIC Cancers

Mesothelioma

  • European Thoracic Oncology Platform (ETOP) ETOP comprises 30 of the leading European Thoracic Oncology clinical and translational research groups and associations with the purpose to promote exchange and research in the field of thoracic malignancies in Europe.
  • International Mesothelioma Interest Group (iMig) iMig is an independent international group of scientists and clinicians working to understand, cure and prevent mesothelioma.
  • International Association for the Study of Lung Cancer (IASLC) IASLC works to promote the study of the aetiology, epidemiology, prevention, diagnosis, treatment and all other aspects of lung cancer; disseminate information about lung cancer to the members of the Association, to the medical community at large, and to the public; and use all available means to eliminate lung cancer as a health threat for the individual patient and throughout the world.

Thymoma

  • International Thymic Malignancy Interest Group (ITMIG) The mission of ITMIG is to promote the advancement of clinical and basic science pertaining to thymic and other mediastinal malignancies and related conditions with the primary goals to provide infrastructure for international collaboration, promote a scientifically-based approach, and facilitate dissemination of knowledge about thymic malignancies and other mediastinal diseases, in order to improve the outcomes of people diagnosed with such a condition.
  • European Thoracic Oncology Platform (ETOP) ETOP comprises 30 of the leading European Thoracic Oncology clinical and translational research groups and associations with the purpose to promote exchange and research in the field of thoracic malignancies in Europe.
  • International Association for the Study of Lung Cancer (IASLC) IASLC works to promote the study of the aetiology, epidemiology, prevention, diagnosis, treatment and all other aspects of lung cancer; disseminate information about lung cancer to the members of the Association, to the medical community at large, and to the public; and use all available means to eliminate lung cancer as a health threat for the individual patient and throughout the world.
  • Foundation for Thymic Cancer Research (FTCR) The FTCR works to collect and share information regarding the treatment, prognosis, and causes of thymic-related cancers and carcinomas, identify various treatment options and to promote research into others, help promote better understanding of the various forms of thymic-related cancers and shed light on support systems, foster support systems for patients and their families, develop a database of experts in this field, and develop products and services to ease the suffering of patients involved in radiation therapy to the head and neck area due to thymic-related cancers and carcinomas.
  • EORTC Lung Cancer Group The aims of the Lung Cancer Co-operative Group are to conduct, develop, coordinate and stimulate research on treatment of patients with intra-thoracic malignancies, including lung, pleural and thymic cancer. To fulfil this, the LCCG will conduct mainly prospective studies and promote both translational research and multi-disciplinary diagnosis and therapy policies.

Rare LUNG Cancers

  • International Association for the Study of Lung Cancer (IASLC) IASLC works to promote the study of the aetiology, epidemiology, prevention, diagnosis, treatment and all other aspects of lung cancer; disseminate information about lung cancer to the members of the Association, to the medical community at large, and to the public; and use all available means to eliminate lung cancer as a health threat for the individual patient and throughout the world.
  • European Lung Cancer Working Party (ELCWP) The ELCWP conducts research in the fields of tobacco smoking, epidemiological studies on lung cancer, meta-analyses and systematic reviews, as well as prognostic factor studies. The therapeutic trial programme focuses on local as well as metastatic forms of the various bronchial cancer histological types.
  • EORTC Lung Cancer Group The aims of the Lung Cancer Co-operative Group are to conduct, develop, coordinate and stimulate research on treatment of patients with intra-thoracic malignancies, including lung, pleural and thymic cancer. To fulfil this, the LCCG will conduct mainly prospective studies and promote both translational research and multi-disciplinary diagnosis and therapy policies.
  • European Respiratory Society (ERS) ERS is a leading professional organisation Europe working to alleviate suffering from respiratory disease and promote lung health through research, sharing of knowledge and through medical and public education.
  • European Lung Foundation (ELF) The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) with the aim of bringing together patients, the public and respiratory professionals to positively influence respiratory medicine.

Rare BREAST Cancers

  • EORTC Breast Cancer Group The aims of the Breast Cancer Group are to conduct, develop, coordinate and stimulate research on a clinical basis for the treatment of breast cancer patients. To this end, the Breast Group is fundamentally based on prospective studies.
  • European Society of Breast Cancer Specialists (EUSOMA) EUSOMA’s mission is to define gold standards in the management of breast diseases, favouring a rapid transfer of knowledge from research centres to clinical practice. EUSOMA aims to promote scientific research and increase contacts between scientists and health care professionals, improve and standardise the level of patient care throughout Europe, bring these to the attention of the appropriate Authorities, and foster training and post-graduate programmes in breast disease.
  • SenoNetwork SenoNetwork is an international network of clinical centres dedicated to the diagnosis and treatment of breast cancer. It is a joint project between EUSOMA (European Society of Breast Cancer Specialists) and ESO (European School of Oncology) with the aim to promote and improve breast cancer care in Europe and throughout the world.
  • Breast International Group (BIG) An organisation for academic breast cancer research groups, BIG facilitates breast cancer research internationally by stimulating cooperation between its members and other academic networks, and collaborating with, but working independently from, the pharmaceutical industry.
  • Breast Cancer Association Consortium (BCAC) BCAC is an international multidisciplinary forum of investigators interested in the inherited risk of breast cancer. Many groups are conducting studies with the aim of identifying genes that may be related to the risk of breast cancer. The aim of the consortium is to combine data from many studies, and to provide a reliable assessment of the risks associated with these genes.
  • Breast Cancer Information Core (BIC) – Open Access On-Line Breast Cancer Mutation Data Base BIC is an international collaborative effort to help identify women who are at high risk to develop breast cancer by finding and assessing the significance of mutations in new susceptibility genes, coordinating the detection and interpretation of these mutations and by making this information available to as many qualified investigators as possible through a central repository for information regarding mutations and polymorphisms.
  • International Breast Cancer Study Group (IBCSG) IBCSG is dedicated to innovative clinical cancer research designed to improve the outcome of women with breast cancer. The goal of clinical research within IBCSG is to find answers to key questions, give patients the best possible treatment outcome and improve their quality of life.
  • The Consortium of Investigators of Modifiers of BRCA1/2 (CIMBA) The Consortium of Investigators of Modifiers of BRCA1/2 is a collaborative group of researchers working on genetic modifiers of cancer risk in BRCA1 and BRCA2 mutation carriers. The aim of CIMBA is to provide sufficient sample sizes to allow large scale studies in order to evaluate reliably the effects of genetic modifiers.
  • International BRCA1/2 Carrier Cohort Study (IBCCS) IBCCS is a collaborative study of women and man carrying a deleterious mutation in BRCA1 or BRCA2. The general purpose of this study is to estimate prospectively the risks of breast, ovarian, and other cancers in BRCA1 and BRCA2 (BRCA1/2) carriers and to assess lifestyle and genetic factors that may modify the cancer risks.

Rare UROGENITAL Cancers

  • EAU Section of Oncological Urology (ESOU) The EAU (European Association of Urology) Section of Oncological Urology (ESOU) aims to intensify educational activities in order to set a higher standard of education and higher standards of uro-oncological care of patients.
  • European Network for the Study of Adrenal Tumours (ENS@T) ENS@T aims to improve the understanding of the genetics, tumourigenesis and hypersecretion in patients with adrenal tumours and associated familial syndromes. It aims to improve the prediction of recurrence and the management of malignant adrenal tumours, which are particularly rare.
  • EORTC Genito-Urinary Tract Cancer Group The objectives of the EORTC GU Group are to co-ordinate and promote multidisciplinary approach to research on urological cancer treatment through clinical urological cancer trials and where possible integrating translational research programmes, to develop, stimulate and co-ordinate clinical, translational and basic research studies , to encourage scientific research, broadcast information and to support and participate in educational efforts.
  • European Kidney Health Alliance (EKHA) EKHA, an alliance of not-for-profit organisations who represent the key stakeholders in kidney health issues in Europe, works on the principle that the issue of kidney health and disease must be considered at European level and that both the European Commission and European Parliament have vital roles to play in assisting national governments with these challenges.

Rare FEMALE GENITAL Cancers

  • European Society of Gynaecological Oncology (ESGO) ESGO strives to improve gynaecological cancer care by providing training standards, educational opportunities and breakthroughs in the prevention, treatment and study of gynaecological oncology.
  • European Network of Gynaecological Oncological Trial Groups (ENGOT) ENGOT is a pan-European Network of Gynaecological Oncological Trial Groups supported by and part of the European Society of Gynaecological Oncology (ESGO). As a network of national and regional clinical trial units, ENGOT coordinates and promotes clinical trials within Europe on patients with gynaecological cancer.
  • European Network of Translational Research In Gynaecological Oncology (ENTRIGO) ESGO has formed ENTRIGO to bring together scientists, clinicians and patients to improve the prediction, prevention, detection and treatment of women specific cancers. The long-term goal of ENTRIGO is to develop at least two innovative tests, techniques or devices, which will be applied to clinical routine care in the field of women specific cancers within the next 10 years.
  • EORTC Gynaecological Cancer Group (EORTC-GCG) The Gynaecological Cancer Group comprises experts in the field of clinical and/or experimental gynaecological oncology. The aims of the Group are to conduct, develop, coordinate and stimulate research, on a clinical basis, in gynaecological cancers patients.
  • International Gynaecologic Cancer Society (IGCS) IGCS contributes to the prevention, treatment and study of gynaecologic cancer, as well as improvement in the quality of life among women suffering from gynaecologic cancer throughout the world.
  • The Ovarian Cancer Association Consortium (OCAC) OCAC is an international multidisciplinary forum of investigators of case-control studies of ovarian cancer, conducting studies with the aim of identifying genes that may be related to the risk of ovarian cancer. The aim of the group is to combine data from many studies, to provide a reliable assessment of the risks associated with these genes.
  • Collaborative Oncological Gene-environment Study (COGS) The overarching goal of COGS is to identify individuals with an increased risk of breast, ovary and prostate cancer and to evaluate the effect of inherited genetic variation on tumour characteristics and clinical outcome.
  • Ovarian Cancer Diagnosis Initiative (OVCAD) OVCAD is aimed at detection of early molecular traces that indicate the recurrence of ovarian cancer. Molecular traces are ideal indicators of Minimal Residual Disease (MRD) as they can easily be identified in a range of body samples.

Rare MALE GENITAL Cancers

  • European Association of Urology (EAU) The mission of the European Association of Urology is to improve urological practice across Europe through educational, scientific and professional activities. With the goal to advance patient care, the EAU is committed to achieving high standards in its specialty.
  • EAU Section of Oncological Urology (ESOU) The EAU Section of Oncological Urology (ESOU) aims to intensify educational activities in order to set a higher standard of education and higher standards of uro-oncological care of patients.
  • Urosource Web site provided by the European Association of Urology and dedicated to bridging the gap between science and practice.
  • EORTC Genito-Urinary Tract Cancer Group The objectives of the EORTC GU Group are to co-ordinate and promote multidisciplinary approach to research on urological cancer treatment through clinical urological cancer trials and where possible integrating translational research programmes, to develop, stimulate and co-ordinate clinical, translational and basic research studies , to encourage scientific research, broadcast information and to support and participate in educational efforts.
  • PRostate cancer AssoCiation group To Investigate Cancer Associated aLterations in the genome (PRACTICAL) PRACTICAL is a collaborative group of researchers interested in inherited risk of prostate cancer and conducting studies with the aim of identifying genes that may be related to the risk of prostate cancer. The aim of the group is to combine data from many studies in order to provide a reliable assessment of the risks associated with these genes.
  • UroToday (Publication) UroToday International Journal is a peer-reviewed, open-access journal that publishes many types of articles about clinical urology and basic research in urology.
  • UroToday International Journal (Publication) UroToday’s mission is to create a free, credible, referenced online publication providing global open access to accurate and timely urological disease information.

Rare NEUROENDOCRINE Cancers

  • European Neuroendocrine Tumor Society (ENETS) The primary aim of ENETS has been to bring together the expertise from such fields as oncology, pathology, radiology, nuclear medicine, endocrinology, surgery and gastroenterology, to integrate basic and clinical research with teaching and to establish guidelines for the diagnosis and therapy of gastroenteropancreatic neuroendocrine tumors (GEP NETs).
  • European Neuroendocrine Association (ENEA) The ENEA was founded to promote, assist and integrate neuroendocrinology in all its aspects, both basic and clinical, throughout the European continent. It organises biennial meetings in a European centre to discuss and explore the latest research and concepts in current neuroendocrinology, and also to educate and enthuse endocrinologists in training.

Rare ENDOCRINE ORGAN Cancers

Adrenal Cancer

  • European Network for the Study of Adrenal Tumours (ENS@T) ENS@T aims to improve the understanding of the genetics, tumourigenesis and hypersecretion in patients with adrenal tumours and associated familial syndromes. It aims to improve the prediction of recurrence and the management of malignant adrenal tumours, which are particularly rare.
  • European Society of Endocrinology (ESE) ESE has been created to promote for the public benefit research, education and clinical practice in endocrinology by the organisation of conferences, training courses and publications, by raising public awareness, liaison with national and international legislators, and by any other appropriate means.

Thyroid and Parathyroid Cancer

  • European Thyroid Association (ETA) The European Thyroid Association’s aims are to promote knowledge in the thyroid field (fundamental and clinical) and improve knowledge of the thyroid gland and its diseases.
  • European Society of Endocrinology (ESE) ESE has been created to promote for the public benefit research, education and clinical practice in endocrinology by the organisation of conferences, training courses and publications, by raising public awareness, liaison with national and international legislators, and by any other appropriate means.
  • Thyroid Cancer Forum UK (UK/Ireland) TCF-UK is a national organisation that facilitates communication between doctors and scientists working in the thyroid cancer field. It is a free and independent service available to consultants and senior scientists involved in the treatment of these diseases in the UK and Ireland.

Rare CNS Cancers

  • EORTC Brain Tumor Group The EORTC Brain Tumour Group (BTG) is a multidisciplinary and international group of neurosurgeons, neurologists, medical oncologists, radiation oncologists and basic scientists, and aims to conduct, develop, coordinate and stimulate research on the treatment of primary and secondary brain tumours. To this end, the BTG is fundamentally based on prospective studies.
  • European Association of Neurooncology (EANO) EANO is the pan-European organisation that represents all the medical and scientific disciplines involved in the diagnosis and treatment of tumours of the nervous system. EANO exists to stimulate interaction and collaboration between those with an interest in neurooncology and provides educational activities through events such as the biennial EANO congresses and also via the EANO website.
  • Interactive Atlas of Neurooncology The atlas aims to facilitate access to information on the neuropathology of central nervous system tumours, to encourage use of a common morphologic language by all concerned specialists, to serve as a teaching tool, to be a source of initial assistance, and to promote further development of the atlas by "interactive" participation of other teams.
  • European Federation of Neurological Societies (EFNS) The EFNS is an organisation that unites and supports neurologists across the whole of Europe and works to advance neurology as an independent specialty covering all diseases of the nervous system, to make neurology universally available in Europe, to support and disseminate neurological research, to provide and support neurological teaching, and to represent European neurology politically.
  • Paraneoplastic neurological syndromes (PNS) Euronetwork The aim of this network is to assist neurologists in the diagnosis and classification of PNS by providing rigorous diagnostic criteria for the different PNS, to interchange information among the different centres, and to facilitate the pooling of patients for clinical trials.

SARCOMAS

  • EORTC Soft Tissue and Bone Sarcoma Group (STBSG) The objectives of the EORTC STBSG are to develop, stimulate and co-ordinate studies on all aspects of the treatment of soft tissue sarcomas (STS) as well as to organise congresses, symposia and conferences to promote these studies.
  • Sarcoma Alliance For Research through Collaboration (SARC) (USA) SARC is dedicated to the development and support of clinical trial research for the prevention, treatment and cure of sarcomas – a cancer of the bone and connective tissue of the body.
  • World Sarcoma Network (WSN) WSN’s mission is to stimulate rapid clinical drug development for sarcomas and enable performance of clinical studies that a cooperative group could not complete on its own.
  • European Musculo-Skeletal Oncology Society (EMSOS) The aims of EMSOS are to advance the science and practice of the diagnosis and treatment of bone and soft tissue tumours, to promote basic and clinical research, and to disseminate knowledge in order to provide a common high standard of musculo-skeletal oncology.
  • European Bone Tumor Network (EuroBoNeT) EuroBoNeT is committed to increasing and disseminating knowledge of primary bone tumours at the molecular level through the exchange of staff and material (virtual BioBank), Standard Operating Protocols and the use of technology platforms which will help to develop new tools for patient care and cure and technology.
  • CONTICANET CONTICANET is an international network of excellence generating a critical mass of key stakeholders in order to overcome difficulties in terms of lack of data, data fragmentation, mobility of researchers, heterogeneity of methodologies and legislation and to harmonise research projects, by developing joint research activities, establishing standard operating procedures and distributing databases and tissue banks.
  • EUROSARC The EUROSARC project was established to develop and conduct investigator-driven clinical trials in specific histological and molecular subtypes of sarcoma, supported by translational analysis. It builds on the successful co-ordination of scientific excellence of Conticanet and EuroBoNeT.
  • Clinical Sarcoma Research (Publication) Open access, peer-reviewed online journal encompassing all aspects of sarcomas, both of soft tissue and bone.

Rare DIGESTIVE Cancers

Oesophageal Cancers

  • European Society of Digestive Oncology (ESDO) The goals of ESDO are to improve and propagate medical treatment of Gl-tract tumours, particularly in a multidisciplinary evidence-based approach, to enhance and promote the screening, early detection, primary prevention and management of pre-malignant or/and malignant diseases of the Gl-tract, to enhance and promote research in digestive oncology, to organise education and academic exchanges in the field of digestive oncology, and to develop guidelines and recommendations for all aspects of digestive oncology for the benefit of patients.
  • EORTC Gastrointestinal Tract Cancer Group The aims of this group are to co-ordinate clinical research in gastrointestinal cancer by formulating and performing clinical trials, to support scientific research in gastrointestinal cancer and to broadcast information thus acquired at biannual meetings and by publication in suitable scientific journals, monographs and newsletters.

Stomach and Small Intestine Cancer

  • European Society of Digestive Oncology (ESDO) The goals of ESDO are to improve and propagate medical treatment of Gl-tract tumours, particularly in a multidisciplinary evidence-based approach, to enhance and promote the screening, early detection, primary prevention and management of pre-malignant or/and malignant diseases of the Gl-tract, to enhance and promote research in digestive oncology, to organise education and academic exchanges in the field of digestive oncology, and to develop guidelines and recommendations for all aspects of digestive oncology for the benefit of patients.
  • International Gastric Cancer Association (IGCA) The objectives of the IGCA are to provide an international forum for the advancement of research into the prevention, diagnosis and treatment of gastric cancer and to facilitate the eradication of gastric cancer worldwide.
  • EORTC Gastrointestinal Tract Cancer Group The aims of this group are to co-ordinate clinical research in gastrointestinal cancer by formulating and performing clinical trials, to support scientific research in gastrointestinal cancer and to broadcast information thus acquired at biannual meetings and by publication in suitable scientific journals, monographs and newsletters.

Colorectal and Anal Cancers

  • European Federation for Colorectal Cancer (EFR) The EFR is committed to researching colorectal cancer in Europe, promoting postgraduate training and finally improving treatment concepts by conducting large international trials. Its goals are to create inter-disciplinary platforms to exchange scientific knowledge, to promote international co-operation, to design and co-ordinate multinational trials, to attain more uniform standards in patient care within Europe, and to identify guidelines for screening, diagnosis and treatment of colorectal cancer.

Liver Cancers and Cancers of the Intrahepatic Bile Tract (IBT)

  • International Liver Cancer Association (ILCA) ILCA is committed to promoting basic, clinical, translational, multi-disciplinary and multi-national liver cancer research, including the development of clinical trials, fosters, encourages and facilitates scientific exchange and dissemination of knowledge, strives to educate physicians, scientists, allied healthcare professionals and the general public at large, educates health authorities on the diagnosis, prevention and management of liver cancer, and values collaboration with other learned societies, governmental organisations, professional associations, groups, institutions and individuals.
  • European Association for the Study of the Liver (EASL) EASL works to promote research in liver disease, to support wider education and to promote changes in European liver policy.
  • International Association for the Study of the Liver (IASL) The IASL works to foster and facilitate the development of knowledge pertaining to liver diseases, towards the prevention, recognition and treatment of liver and biliary tract diseases and to facilitate the training of experts in hepatology.
  • International Hepato-Pancreato-Biliary Association, Inc. (IHPBA) IHPBA was created with the vision to devote itself to relieve worldwide human suffering caused by Hepato Pancreato Biliary (HPB) disorders by improving education, training, innovation, research and patient care.
  • European Liver and Intestine Transplant Association (ELITA) ELITA provides a forum for those working in the field of liver and intestinal transplantation to exchange scientific information and views related primarily to providing the best service for patients in Europe requiring liver or intestinal transplantation.

Gallbladder Cancers and Cancers of the Extrahepatic Biliary Tract (EBT)

  • European Society of Digestive Oncology (ESDO) The goals of ESDO are to improve and propagate medical treatment of Gl-tract tumours, particularly in a multidisciplinary evidence-based approach, to enhance and promote the screening, early detection, primary prevention and management of pre-malignant or/and malignant diseases of the Gl-tract, to enhance and promote research in digestive oncology, to organise education and academic exchanges in the field of digestive oncology, and to develop guidelines and recommendations for all aspects of digestive oncology for the benefit of patients.
  • International Gastric Cancer Association (IGCA) The objectives of the IGCA are to provide an international forum for the advancement of research into the prevention, diagnosis and treatment of gastric cancer and to facilitate the eradication of gastric cancer worldwide.
  • EORTC Gastrointestinal Tract Cancer Group The aims of this group are to co-ordinate clinical research in gastrointestinal cancer by formulating and performing clinical trials, to support scientific research in gastrointestinal cancer and to broadcast information thus acquired at biannual meetings and by publication in suitable scientific journals, monographs and newsletters.

Pancreatic Cancers

Rare Cancers of HEAD & NECK

  • European Head and Neck Society (EHNS) The intent of the EHNS is to promote exchange of knowledge in all aspects of head and neck neoplastic diseases and to promote the highest standards of research, education and training, disease prevention and patient care. It is a multi-disciplinary body bringing together clinicians (e.g., head and neck/oral/plastic surgeons, radiation therapists, medical oncologists, imaging specialists, pathologists), other health professionals (e.g., speech therapists, cancer nurses, psychologists, physiotherapists, dieticians, social workers), basic scientists and patients organisations involved in any aspect of Head and Neck Oncology.
  • International Society of Oral Oncology (ISOO) The purpose of ISOO is to promote scientific exchange among health care professionals in oncology, cytotoxic therapy and its impact on the oral environment. The Society provides a multidisciplinary forum for scientists and clinicians to focus on concepts associated with oral consequences of antineoplastic therapy, novel strategies germane to cancer research, educational pursuits related to cancer and cancer therapy oral morbidity, and scientific diversity through collaboration.
  • EORTC Head & Neck Group The aims of the Head and Neck Cancer Cooperative Group are to conduct, develop, coordinate and stimulate research, on a clinical basis, in head and neck cancer patients. To fulfil this, the HNCCG will conduct mainly prospective studies and promote both translational research and multi-disciplinary diagnosis and therapy policies.
  • Ophthalmic Oncology Group of the European Organization for Research and Treatment of Cancer (EORTC-OOG) The aim of the EORTC-OOG is to improve the care of patients with ophthalmic tumours by organising multicentre clinical and basic science, research projects, quality control studies and scientific meetings.
  • International Federation of Oto-Rhino-Laryngological Societies (IFOS) IFOS is the global organisation which represents organised Otolaryngology. It’s mission is to identify critical global ORL care needs and communication disorders, to propose ways to prevent and treat individuals with them and to set priorities among these needs according to their impact on society.
  • European Academy of Otology & Neuro-Otology (EAONO) EAONO provides information, education and training services to otologists and EAONO members and organises corresponding congresses and events.
  • European Academy of Otorhinolaryngology, Head and Neck Surgery The academy is devoted to advancing science and research as well as education and life-long learning in the fields of otology, rhinology, laryngology and the related areas of plastic and reconstructive surgery, skull-base surgery, audiology, phoniatrics, paediatric otorhinolaryngology, surgical and medical oncology of the head and neck.

PAEDIATRIC Solid Cancers

  • European Society for Paediatric Oncology (SIOP Europe) SIOPE is a European organisation aimed at promoting optimal standards of care for children and young people with cancer and dedicated to enhancing cancer awareness, diagnosis and treatment of children.
  • European Network for Cancer in Childhood and Adolescents (ENCCA) By integrating all relevant stakeholders from the European paediatric oncology community, including patients and families through ICCCPO (International Confederation of Childhood Cancer Parent Organisations), ENCCA is dedicated to unite informal Clinical Trial Groups in Paediatric and Adolescent Oncology and their affiliated research platforms to form a sustainable European Virtual Institute.
  • Innovative Therapies for Children with Cancer (ITCC) European Consortium ITCC gathers 37 European Paediatric Oncology Departments (map of Centers) with expertise in conducting early phase trials in children and adolescents, and 9 European research laboratories to develop novel therapies for the treatment of paediatric and adolescent cancers in cooperation with regulatory bodies, pharmaceutical enterprises, parents and patients.
  • Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer (PanCare) PanCare is a multidisciplinary pan‐European network of professionals, survivors and their families that aims to reduce the frequency, severity and impact of late side‐effects of the treatment of children and adolescents with cancer.
  • European Paediatric oncology Off-patent medicines Consortium (EPOC) The EPOC study is being conducted in 21 centres in 4 countries across Europe to improve the knowledge of doxorubicin pharmacokinetics in children in order to give more precise dose recommendations in different age groups, reducing toxicity while maintaining efficacy.

Rare HAEMATOLOGIC Cancers

Lymphomas

  • EORTC Lymphoma Group The aim of the group is to study malignant lymphomas, their natural history, diagnosis, treatment and sequels of treatment.
  • EORTC Leukaemia Group The aim of the group is to promote the study of leukaemias and related malignancies with regard to their natural history, diagnosis, treatment and sequellae of treatment.
  • European Mantle Cell Lymphoma Network The European Mantle Cell Lymphoma Network is a group of clinicians, pathologists and molecular scientists who have joined forces to evaluate innovative therapeutic strategies and investigate the molecular mechanisms of malignant transformation in MCL.
  • International Society for Cutaneous Lymphomas (ISCL) The aims of the society are to increase knowledge of lymphoproliferative and related disorders of the skin, foster collaboration among clinicians, scientists and regional or national groups by being sponsor of an international registry of cutaneous lymphomas, promote dissemination of scientific information by organizing meetings, and favour consensus about diagnosis, management and treatment of cutaneous lymphoma.
  • EORTC Cutaneous Lymphoma Task Force The aims of the group of the EORTC Cutaneous Lymphoma Study Group are conducting, developing, coordinating and stimulating research on patients with cutaneous lymphoma, as well as education and training of physicians involved in the diagnosis and treatment of cutaneous lymphoma patients. Research is focused on the definition and evaluation of diagnostic criteria and techniques, and prospective clinical trials.
  • Nordic Lymphoma Group (NLG) The NLG is conducting combined clinical and biological studies within the Nordic countries (Denmark, Norway, Sweden, and Finland). The aims of the research are to increase insight in pathogenesis, clinical and molecular prognostic factors, as well as to improve treatment and survival for lymphoma patients.
  • European Myeloma Network (EMN) The EMN is a consortium integrating laboratory research and innovative cancer therapy in multiple myeloma (MM) and Related Disorders.
  • International Extranodal Lymphoma Study Group (IELSG) The purpose of the International Extranodal Lymphoma Study Group is to advance the study of the biology and to develop the treatment for extranodal lymphomas.
  • EORTC Children’s Leukaemia Group The mission of this group is to improve the treatment of leukaemias and related malignancies (lymphomas, myelodysplastic syndromes, ..) by means of clinical trials, to promote the study of these diseases with regard to their epidemiology and the long term sequellae of treatment, and to promote the clinical application, on a large number of patients, of new biologic techniques.

Leukaemias

  • European LeukemiaNet The European LeukemiaNet is an EU-funded organisation of physicians, scientists and patients with interest in leukaemia. It aims to improve the treatment and knowledge about leukaemia in Europe and spread excellence. The website delivers information for physicians, patients (e.g. patient organisations in Europe), ongoing clinical trials and further information about the disease.
  • EORTC Leukaemia Group The aim of the group is to promote the study of leukaemias and related malignancies with regard to their natural history, diagnosis, treatment and sequellae of treatment.
  • EORTC Children’s Leukaemia Group The mission of this group is to improve the treatment of leukaemias and related malignancies (lymphomas, myelodysplastic syndromes, ..) by means of clinical trials, to promote the study of these diseases with regard to their epidemiology and the long term sequellae of treatment, and to promote the clinical application, on a large number of patients, of new biologic techniques.
  • European Leukemia Trial Registry The European Leukemia Trial Registry is bilingual (English/German) and provides short protocols of ongoing European and German leukaemia trials.

Myelodysplastic and Myeloproliferative Disorders/Neoplasms

  • MDS Foundation The MDS Foundation is a multi-disciplinary, international organisation devoted to the prevention, treatment, and study of the myelodysplastic syndromes.
  • MPN Research Foundation The MPN Research Foundation works to advance research and empower patients with polycythemia vera, essential thrombocythemia and myelofibrosis.
  • CMPD Education Foundation (USA) CMPD Education Foundation is run by volunteer MPD patients and its mission goals include information, education and support, patient and MD conferences, newsletters and other publications, doctor-patient sharing, doctor/doctor/researcher networking, and facilitating patient participation/accrual in clinical studies and surveys.
  • MPD-NET Online Support Group for Myeloproliferative Disorders MPDinfo.org, a resource of ACOR ( Association of Cancer Online Resources) and the CMPD Education Foundation, is an un-moderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to agnogenic myeloid metaplasis (primary myelofibrosis), chronic myelogenous leukaemia, essential thrombocythaemia, myelodysplastic syndrome, myelofibrosis and polycythaemia vera.
  • European LeukemiaNet The European LeukemiaNet is an EU-funded organisation of physicians, scientists and patients with interest in leukaemia. It aims to improve the treatment and knowledge about leukaemia in Europe and spread excellence. The website delivers information for physicians, patients (e.g. patient organisations in Europe), ongoing clinical trials and further information about the disease.
  • EORTC Leukaemia Group The aim of the group is to promote the study of leukaemias and related malignancies with regard to their natural history, diagnosis, treatment and sequellae of treatment.
  • EORTC Children’s Leukaemia Group The mission of this group is to improve the treatment of leukaemias and related malignancies (lymphomas, myelodysplastic syndromes, ..) by means of clinical trials, to promote the study of these diseases with regard to their epidemiology and the long term sequellae of treatment, and to promote the clinical application, on a large number of patients, of new biologic techniques.
  • European Leukemia Trial Registry The European Leukemia Trial Registry is bilingual (English/German) and provides short protocols of ongoing European and German leukaemia trials.