A Cross-Border Perspective On Pathologic Diagnosis of Rare Cancers

  • Date: 11 Feb 2014

This event was hosted by Ms Zofija Mazej Kukovič, MEP, at the European Parliament, Brussels and supported by Alojz Peterle, MEP.  MEPs and a Member of the European Commission responsible for European Reference Networks were presented with findings and asked to comment on how to implement the recommendations.

Welcome and Introductory Remarks

Zofija Mazej Kukovič MEP

Rare Cancers Europe: A Working Consensus

Paolo G. Casali, Chair of ESMO Public Policy Committee, RCE:

Angelo Paolo Dei Tos, Director of the departments of Pathology & Oncology Treviso, Italy

Issues Facing Rare Cancer Patients in Europe

Jayne Bressington, Eve's Mum, Trustee GIST Support UK, Patient Director of the PAWS-GIST Initiative, Patient Advocate - Children's Cancer CRG, NHS England

Issues Facing Research For Rare Cancers in Europe

Anne Mathieu-Boue, MD, Novartis, Industry Partners of RCE:

Anastassia Negrouk, Head of International Regulatory and Intergroup Office, EORTC

Development of European Reference Networks

Annika Nowak, Team Leader, Health Systems Unit, DG SANCO

Next Steps & Discussion

Concluding Remarks and Summary

Zofija Mazej Kukovič MEP